Monday, August 25, 2008

Memory Walk Update

The more time that's gone by, the more amazed, touched, and downright humbled I've been at the response to my request for donations for the Alzheimer's Association Memory Walk. The walk itself is just under four weeks away, and with the help of friends, family, and even relative internet strangers, we've raised...

$2,165.

Over twenty-one hundred bucks that will be going toward Alzheimer's research, treatment, and support for families with loved ones who suffer from this evil disease. What a wonderful tribute you all have paid to my mom, who many of you know, but even more of you do not. She, my dad, and I are deeply grateful.

I've gotta admit, though--when it comes to this cause, I'm greedy. Not for myself...not on my own behalf...but because I want so much for this very worthwhile organization to have as many resources at its disposal as possible.

Alzheimers--you've made this personal. And I'm gonna be part of the collective butt-kicking I expect you to receive as we find out more about you, the way you operate, and how to put you away once and for all.

A HUGE thanks once again to all of you out there who have helped in this fight.

UPDATE (to the update):
My mom will be participating in an Alzheimer's drug study. I just got more info on the study last night. The drug is called Bapineuzumab. Here's what clinicaltrials.gov has to say about this study:

This is a multicenter, double-blind, placebo controlled, randomized, outpatient
multiple dose study in male and female patients aged 50 to 89 years with mild to
moderate AD. Approximately 200 study sites in the US and Canada will be
involved. Patients will be randomized to receive either bapineuzumab or placebo.
Each patient's participation will last approximately 1.5 years.Bapineuzumab is a
humanized monoclonal antibody, which binds to and clears beta amyloid peptide,
and is designed to provide antibodies to beta amyloid directly to the patient.
It's beta amyloid peptide that causes the "brain tangles" that most scientists think cause Alzheimers. So the hope is that the drug will bind to, clear out, and prevent the return of that stuff. According to the site, 3/4 of the participants will receive the drug, while 1/4 will receive the placebo--and neither the participant nor their doctor will know what they're getting during the trial.

I know my mom's excited both to be able to help in the fight against Alzheimers AND at the possibility that in the process, this drug may be of benefit to her as well. It's this kind of study that the money from the Memory Walk helps to support.

So, at the risk of sounding like a broken record, thanks again, and God bless.

LH

1 comment:

Mark said...

Dear Readers you might be interested in the beta amyloid org website which is launched on World’s AD day.
The beta amyloid organization, has now its own website which has been launched on World’s Alzheimer’s Day. The site, www.betaamyloid.org allows visitors provide the latest happening in beta amyloid research. Our mission is to lead a cohesive approach to eliminate Alzheimer Disease. We provide information and support to the scientist working on alzheimer’s research. Our team of internationally renowned scientists, that has provided the conceptual framework for modern day investigations into Alzheimer’s disease.
Alzheimers disease is the leading cause of dementia in older people, and it is estimated that there are 24 million people worldwide with dementia, a figure which is set to rise to 81 million people by 2040, affecting one in 14 people over 65 and one in three over 90.
The organization is actively involved in providing the latest happenings in Alzheimer Scientific Research. To fulfill this mission, the beta amyloid organization publishes the scientific findings, provides information and other services to scientific community of Alzheimer’s disease, health professionals and the public.
Thanks & regards,
Team
Beta amyloid org
Email: info@betaamyloid.org
Web: www.betaamyloid.org